Search For "rare disease"
Delhi HC summons Union Health Secretary over non-compliance of orders
Updated : 2 years, 10 months ago IST
Justice Prathiba M Singh said in the order issued on May 3, "On 15th February 2023, a further amount of Rs 5 crore was directed to be released by the Ministry of Health and Family Welfare. The said direction was reiterated in an order dated 6th March 2023. However, the said amount has not be
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Delhi HC issues notice on pleas seeking free treatment for children suffer
Updated : 2 years, 11 months ago IST
The Delhi High Court on Tuesday issued notice to the Central Government and All India Institute of Medical Science (AIIMS) on a fresh batch of petitions moved on behalf of children suffering from rare diseases.
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Govt exempts import duty on drugs used for treatment of rare diseases
Updated : 2 years, 11 months ago IST
The central has fully exempted basic customs duty on the import of all drugs and food for special medical purposes and for personal use for the treatment of rare diseases.
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Delhi HC issues notice to Centre on plea of 11-year-old child suffering fr
Updated : 2 years, 11 months ago IST
Justice Prathiba M Singh on Friday issued notice to the Ministry of Health and Family Welfare on the plea and listed the matter on April 13 for further hearing.
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Do rare Diseases account for the economic burden on India?
Updated : 2 years, 12 months ago IST
New Delhi [India], March 18 (ANI/GPRC): The meaning of the term "Rare" is "not occur very often", but rare diseases are cumulatively not so rare anymore. WHO refers to the rare disease as an often debilitating life-long disease or disorder with a prevalence of 1 or less per 1000 population.
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Delhi HC directs to hold meeting on issue of funding of clinical trial for
Updated : 3 years ago IST
The High court also sought a status report from AIIMS on the treatment of children suffering from rare diseases.
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Delhi HC pulls up Centre, AIIMS for not informing about clinical trial of
Updated : 3 years ago IST
The Delhi High Court on Wednesday pulled up the central government, All India Institute of Medical Sciences (AIIMS) and even the counsel for petitioners for not informing it about the beginning of clinical trials for rare disease medicine. The court was hearing the batch of petitions by the
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Study discover neurological disease involving cellular recycling process
Updated : 3 years ago IST
ATG4D assists in the autophagy process, which cells utilise to digest and recycle harmed proteins and other damaged parts of the cell to maintain health. Although all cells in the body use autophagy, neurons rely on it more than other cells do in order to survive. However, little is understo
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Study reveals expanding gene therapy for rare disease that causes blindnes
Updated : 3 years, 1 month ago IST
In an effort to treat the rare genetic condition Usher Syndrome Type 2A (USH2A), a University of Houston researcher is developing a gene therapy technique.
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"Lives of 432 patients under threat": BJP MP Varun Gandhi requests govt to
Updated : 3 years, 2 months ago IST
Bharatiya Janata Party (BJP) leader and Lok Sabha MP Varun Gandhi on Saturday in an official letter lamented the inability of the central government to provide benefits to patients under the National Policy of Rare Diseases scheme.
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Awareness walk advocating inclusion of Persons with Disabilities in societ
Updated : 3 years, 3 months ago IST
New Delhi [India], December 8 (ANI/PNN): On the occasion of the "International Day of Persons with Disabilities" (IDPD) 2022, Ayushkama Foundation organized an "Awareness Walk for Equal Participation of Persons with Disabilities", at the Central Vista Avenue, India Gate, New Delhi. The organ
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Risk of lymphoma linked to breast implants: Study
Updated : 3 years, 3 months ago IST
The number of people suffering from Anaplastic large-cell lymphoma (ALCL), a rare disease, has recently increased and this spike in numbers may be linked to the expanding popularity of textured breast implants.
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