Search For "rare disease"
All you need to know about NeuroEndocrine Tumour!
Updated : 7 years, 12 months ago IST
New Delhi [India], Mar. 16 (ANI): As the news of Bollywood actor Irrfan Khan being diagnosed with NeuroEndocrine Tumour (NETs) broke the internet, people have gotten curious about this rare disease.
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Irrfan Khan diagnosed with NeuroEndocrine Tumour
Updated : 7 years, 12 months ago IST
New Delhi [India], Mar. 16 (ANI): Finally breaking his silence, Irrfan Khan revealed that he is diagnosed with NeuroEndocrine Tumour.
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More about National Rare Disease policy
Updated : 8 years ago IST
New Delhi [India], Mar 08 (ANI): Rare diseases, which are often referred to as orphan diseases, are estimated to have impacted 72-96 million people in India. The Indian government has now put a National Rare Disease Policy in place and Rs 100 crore funds have been allocated towards genetic d
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Fans wish Irrfan Khan for recovery from 'rare disease'
Updated : 8 years ago IST
New Delhi [India], Mar. 06 (ANI): Ever since Irrfan Khan revealed contraction of a 'rare disease' on Monday, his fans have been flooding his Twitter with well-wishing messages.
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Delhi state government takes a step forward for rare diseases
Updated : 8 years, 1 month ago IST
New Delhi [India], Feb 9 (ANI): As an important step towards expediting the process of providing treatment to rare disease patients, the Delhi state government, in the High Court, has proposed the setting up of a Technical cum Administrative Committee for rare diseases.
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Rare diseases lead to poor quality of life in people
Updated : 8 years, 2 months ago IST
Washington D.C. [USA], Dec 20 (ANI): People living with rare diseases are at greater risk of experiencing poor quality of life such as increased levels of anxiety, depression, pain, fatigue.
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A call for action to improve healthcare for rare disease patients
Updated : 8 years, 3 months ago IST
New Delhi [India], Dec 9 (ANI): Emphasising on the need for providing relief to rare disease patients, the Delhi High Court stressed on the importance of state governments' intervention for the same.
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Providing timely treatment to rare disease patients is need of the hour
Updated : 8 years, 3 months ago IST
New Delhi [India], Nov 24 (ANI): Putting the focus on rare diseases, experts have laid emphasis on ensuring timely treatment for the patients. Although very few people are affected by these disorders, rare diseases are often chronic and severe and make the life of a patient debilitating.
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Timely treatment of rare diseases essential for patients' quality life
Updated : 8 years, 4 months ago IST
Chennai (Tamil Nadu) [India], Oct 17 (ANI): Emphasising on the importance of timely treatment for Lysosomal Storage Disorders (LSDs), medical experts urged for concrete steps to be taken in this direction.
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Event organised to spread awareness about rare disease Gaucher
Updated : 8 years, 5 months ago IST
Kochi (Kerala) [India], Oct 15 (ANI): In the backdrop of the International Gaucher Day, Lysosomal Storage Disorders Support Society (LSDSS), a patient group for Lysosomal Storage Disorders (LSDs) organised a Gaucher disease awareness event here.
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Timely diagnosis of rare diseases is important, urge experts
Updated : 8 years, 6 months ago IST
New Delhi [India], Sep 15 (ANI): The early diagnosis of rare diseases holds paramount importance, according to experts.
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Delhi HC directs Centre to implement rare diseases policy
Updated : 8 years, 6 months ago IST
New Delhi [India] May 26 (ANI): The Delhi High Court on Friday directed the Centre to forthwith implement national policy for treatment of rare diseases.
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