Search For "rare disease"
Researchers discover possible new treatment strategy against progeria
Updated : 6 years, 3 months ago IST
Washington D.C. [USA], Nov 18 (ANI): Progeria is a very rare disease that affects about one in 18 million children and results in premature ageing and death in adolescence from complications of cardiovascular disease.
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Sonipat: Child born with rare disease, critical
Updated : 6 years, 5 months ago IST
Sonipat (Haryana) [India], Sept 20 (ANI): A child born at Bhagat Phool Singh Medical College in Gohana here with a rare disease has been declared critical, a hospital official informed on Friday.
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‘Race for 7’: A multi-city run to create awareness for rare diseases
Updated : 7 years ago IST
New Delhi [India], Mar 14 (ANI): It is possible to live a fairly normal life with a rare disease, may be difficult but certainly not impossible.
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Dr. Lal PathLabs Ltd. collaborates with ORDI to sensitize India on rare di
Updated : 7 years ago IST
New Delhi [India], March 5 (ANI): Observing rare disease Awareness day on 28th February 2019, Dr. Lal PathLabs Ltd. has associated with Organization of Rare Disease India (ORDI) for a campaign “Rare Needs Care”. A leading diagnostic and related healthcare service provider, Dr. Lal PathLabs L
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Centre to reframe policy for rare diseases, files affidavit in HC
Updated : 7 years, 2 months ago IST
New Delhi [India], Dec 18 (ANI): The Central government has filed an affidavit in the Delhi High Court, underlying need to re-frame the policy for rare diseases which was finalised and approved last year.
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KMC Medical Genetics Team discovers rare bone disorder
Updated : 7 years, 3 months ago IST
New Delhi [India], Dec 17 (ANI-BusinessWireIndia): A team of researchers at the Department of Medical Genetics, Kasturba Medical College, Manipal led by Dr. Girisha KM, Professor and Head Department of Medical Genetics, has discovered a rare disease affecting bone growth in children.
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PIL in SC over committee formation for rare diseases' treatment
Updated : 7 years, 5 months ago IST
New Delhi [India] October 15 (ANI): A Public Interest Litigation (PIL) has been filed in the Supreme Court against the Centre and state governments for "failing to constitute a state-level technical-cum-administrative committee, and to identify designated hospitals for treatment of people s
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Reviewing first year of National Policy for Treatment of Rare Diseases
Updated : 7 years, 9 months ago IST
New Delhi [India], May 26 (ANI): The Ministry of Health & Family Welfare (MoH&FW), in 2017, took a landmark step by approving the National Policy for Treatment of Rare Diseases.
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ORDI appeals to state governments to implement rare disease policy
Updated : 7 years, 11 months ago IST
New Delhi [India], Apr 21 (ANI): Organisation for Rare Disease India (ORDI), a non-profit patient association focusing on improving the health of patients with rare diseases, has taken the initiative to appeal to the state governments to implement individual state rare disease policies as pe
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Just keep going: Irrfan Khan shares touching post
Updated : 7 years, 12 months ago IST
New Delhi [India], Mar 20 (ANI): National Award winning actor Irrfan Khan, who is suffering from a rare disease, has posted a touching message on social media.
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Why cells rapidly age in children with rare, fatal disease?
Updated : 7 years, 12 months ago IST
Washington D.C. [U.S.A.], Mar. 20 (ANI): Scientists have discovered new causes of cellular decline in prematurely aging kids with rare and fatal diseases.
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Irrfan Khan's tumour can be removed surgically
Updated : 8 years ago IST
New Delhi [India], Mar. 16 (ANI): In what could bring respite to Irrfan Khan's fans, who are in a state of shock after the actor revealed that he is diagnosed with NeuroEndocrine Tumour, a doctor said that former's 'rare disease' is curable.
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