Search For "rare disease"
'Kerala United Against Rare Diseases' project will be crucial in rare dise
Updated : 2 years ago IST
'Kerala United Against Rare Diseases' or CARE project will be a crucial step for the state in the field of rare disease treatment, said Chief Minister Pinarayi Vijayan on Friday.
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Study shows how to treat hereditary, rare diseases
Updated : 5 months, 1 week ago IST
Much research has been undertaken over many decades on diseases that affect large populations, such as cancer and heart disease. Therapeutic approaches have considerably improved as a result of long-term research work on diseases that affect a huge number of individuals.
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For the first time, 'Made in India' drugs launched for rare diseases
Updated : 2 years, 3 months ago IST
"This is a revolutionary change with a huge cost difference. If a drug is costing 2.5 crore then in India it will cost 2.5 lakh," sources said.
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Study sheds more light on advances, challenges in gene therapy for rare di
Updated : 2 years, 4 months ago IST
A recent review article Therapy summarises major milestones in the development of gene therapy medical products that have aided in the treatment of a large number of uncommon disorders. The essay also discusses the obstacles to the advancement of gene therapy for rare disorders.
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Karnataka CM appeals to PM Modi for lifesaving aid for toddler battling ra
Updated : 2 years, 4 months ago IST
Karnataka CM has requested PM Modi's assistance in securing financial support from the Centre for the child's treatment and urged the consideration of waiving import taxes on the required Zolgensma injection.
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Network-based techniques provide innovative avenues to classify, treat rar
Updated : 5 months, 1 week ago IST
Researchers used a network-based approach to reclassify around 200 uncommon disorders. Initial comparisons with clinical data show how this can improve therapy efficacy prediction.
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Study sheds more light on gene therapy for hearing loss associated with ra
Updated : 2 years, 6 months ago IST
A multinational team led by UCL and the NIHR Great Ormond Street Hospital Biomedical Research Centre found a gene treatment in mice that greatly lowers the hearing loss associated with Norrie disease.
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Better regulatory mechanism and patient registry; a must for rare disease
Updated : 2 years, 8 months ago IST
New Delhi [India], July 1: The experts at the Rare Disease Summit emphasised the need for patient registry for accessible treatment opportunities for rare disease patients while deliberating on the various aspects of rare disease management in the country. The summit was organized by the hea
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Delhi HC constitutes 5-member panel to implement rare disease policy
Updated : 2 years, 9 months ago IST
Justice Prathiba M Singh on May 15 directed to constitute of a five-member committee to implement the Rare disease policy and to look into the cases registered with the All India Institute of Medical Sciences (AIIMS).
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Public Health Initiatives by Takeda to strengthen health system for rare d
Updated : 2 years, 10 months ago IST
New Delhi [India], May 18 (ANI/NewsVoir): Takeda Biopharmaceuticals India Private Limited (formerly known as Baxalta Bioscience India Private Limited), a global values-based, R&D-driven biopharmaceutical leader conducted dissemination of its public health initiatives in strengthening the
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Centre releases Rs 40 cr for treatment of rare diseases, AIIMS gets Rs 10
Updated : 2 years, 10 months ago IST
A short affidavit was filed on behalf of the Ministry of Health in the batch of Petitions filed by children Suffering from Rare diseases who sought direction for free treatment. Justice Prathiba M Singh said, "The ongoing treatment of the children should not be stopped due to funds."
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Expert team of 24 doctors providing the best Superspeciality Healthcare in
Updated : 2 years, 10 months ago IST
Vadodara (Gujarat) [India], May 8 (ANI/SRV): Aadicura Superspeciality Hospital, the top multispeciality hospital in Vadodara, is proud to announce its team of 24 expert doctors who specialize in a wide range of super speciality fields and is dedicated to providing top-notch healthcare servic
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