Search For "rare disease"
Delhi HC expresses displeasure over no treatment provided to children suff
Updated : 4 years, 1 month ago IST
New Delhi [India], February 2 (ANI): The Delhi High Court on Tuesday expressed its displeasure over treatment not yet provided to the children suffering from the rare disease Duchenne muscular dystrophy (DMD) despite the direction of the court. and directed to start the treatment immediately
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South Eastern Coalfields to pay Rs 16 crore for treatment of coal miner's
Updated : 4 years, 3 months ago IST
New Delhi [India], November 18 (ANI): SECL, a subsidiary of Coal India Limited (CIL), has agreed to bear a cost of Rs 16 crores for the treatment of a two-year-old child of its coal miner who is suffering from a rare disease called Spinal Muscular Atrophy (SMA).
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Gene behind unusual form of Cushing's syndrome identified during study
Updated : 4 years, 4 months ago IST
Washington [US], October 17 (ANI): The gene responsible for the development of a food-dependent form of Cushing's Syndrome, a rare disease affecting both adrenal glands, has been successfully identified by a team of scientists in Montreal and Paris.
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Study identifies gene behind an unusual form of Cushing's Syndrome
Updated : 4 years, 5 months ago IST
Washington [US], October 14 (ANI): A team of scientists in Montreal and Paris has succeeded in identifying the gene responsible for the development of a food-dependent form of Cushing's Syndrome, a rare disease affecting both adrenal glands.
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Evexia Lifecare Ltd plans major expansion; to enter into Bullion Trading
Updated : 4 years, 5 months ago IST
Vadodara (Gujarat) [India], October 11 (ANI/PNN): BSE listed (524444), Evexia Lifecare Limited has received initial plant layout permission from FDA to set up Active Pharmaceutical Ingredient (API) manufacturing plant of Isometamidium (Isometa) in addition to the current ongoing commercial a
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Kerala HC directs state govt to implement regulative measures for crowdfun
Updated : 4 years, 5 months ago IST
Kochi (Kerala) [India], October 7 (ANI): Kerala High Court on Wednesday directed the State Government to design a platform to implement regulative measures for crowdfunding towards treatment for children affected with rare diseases.
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Bihar BJP president Sanjay Jaiswal diagnosed with Stevens-Johnson syndrome
Updated : 4 years, 6 months ago IST
Patna (Bihar) [India], September 2 (ANI): Bharatiya Janata Party (BJP) Bihar state president Sanjay Jaiswal has been admitted to Patna AIIMS after being diagnosed with a rare disease Stevens-Johnson syndrome.
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Govt crowdfunding portal for rare diseases gets 31 patients registration i
Updated : 4 years, 6 months ago IST
New Delhi [India], August 18 (ANI): The government of India has started a unique initiative i.e a crowdfunding programme for the treatment of rare diseases with the help of a portal. Under this programme, corporates and individuals can donate online for the treatment of patients suffering fr
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Child with rare disease dies, Kerala HC asks state govt about Rs 16.5 cror
Updated : 4 years, 7 months ago IST
Kochi (Kerala) [India], July 22 (ANI): The Kerala High Court on Thursday directed the state government to inform about Rs 16.5 crore collected through crowdfunding for the treatment of a child who died of Spinal Muscular Atrophy (SMA) recently.
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Kerala CM requests PM Modi to waive duty on imported drug for child with r
Updated : 4 years, 8 months ago IST
Thiruvananthapuram (Kerala) [India], July 9 (ANI): Kerala Chief Minister Pinarayi Vijayan on Thursday wrote to Prime Minister Narendra Modi requesting him to ask the finance ministry not to levy Customs duty and the Integrated Goods and Services Tax for the import of a Rs 18 crore life-sa
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Hyderabad boy battling rare disease receives world's most expensive medici
Updated : 4 years, 9 months ago IST
Hyderabad (Telangana) [India], June 13 (ANI): Three-year-old Ayaansh Gupta from Hyderabad, suffering from a rare disease Spinal Muscular Atrophy (SMA), has been administered with the world's most expensive medicine ZOLGENSMA, after his parents mobilised Rs 16 crore through crowd-funding.
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Pregnant woman with rare disease, COVID-19 treated in Lucknow hospital, de
Updated : 4 years, 9 months ago IST
Lucknow (Uttar Pradesh) [India], May 25 (ANI): A 38-week pregnant woman suffering from a rare disease Idiopathic Thrombocytopenic Purpura and from COVID-19 also, was successfully treated at Queen Mary's Hospital in King George's Medical University (KGMU), Lucknow and gave birth to a baby gir
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