'Kerala United Against Rare Diseases' or CARE project will be a crucial step for the state in the field of rare disease treatment, said Chief Minister Pinarayi Vijayan on Friday.
Much research has been undertaken over many decades on diseases that affect large populations, such as cancer and heart disease. Therapeutic approaches have considerably improved as a result of long-term research work on diseases that affect a huge number of individuals.
A recent review article Therapy summarises major milestones in the development of gene therapy medical products that have aided in the treatment of a large number of uncommon disorders. The essay also discusses the obstacles to the advancement of gene therapy for rare disorders.
Researchers used a network-based approach to reclassify around 200 uncommon disorders. Initial comparisons with clinical data show how this can improve therapy efficacy prediction.
New Delhi [India], July 1: The experts at the Rare Disease Summit emphasised the need for patient registry for accessible treatment opportunities for rare disease patients while deliberating on the various aspects of rare disease management in the country. The summit was organized by the hea
New Delhi [India], May 18 (ANI/NewsVoir): Takeda Biopharmaceuticals India Private Limited (formerly known as Baxalta Bioscience India Private Limited), a global values-based, R&D-driven biopharmaceutical leader conducted dissemination of its public health initiatives in strengthening the
A short affidavit was filed on behalf of the Ministry of Health in the batch of Petitions filed by children Suffering from Rare diseases who sought direction for free treatment. Justice Prathiba M Singh said, "The ongoing treatment of the children should not be stopped due to funds."
Vadodara (Gujarat) [India], May 8 (ANI/SRV): Aadicura Superspeciality Hospital, the top multispeciality hospital in Vadodara, is proud to announce its team of 24 expert doctors who specialize in a wide range of super speciality fields and is dedicated to providing top-notch healthcare servic
Justice Prathiba M Singh said in the order issued on May 3, "On 15th February 2023, a further amount of Rs 5 crore was directed to be released by the Ministry of Health and Family Welfare. The said direction was reiterated in an order dated 6th March 2023. However, the said amount has not be
The Delhi High Court on Tuesday issued notice to the Central Government and All India Institute of Medical Science (AIIMS) on a fresh batch of petitions moved on behalf of children suffering from rare diseases.