Search For "rare diseases"
Govt exempts import duty on drugs used for treatment of rare diseases
Updated : 2 years, 11 months ago IST
The central has fully exempted basic customs duty on the import of all drugs and food for special medical purposes and for personal use for the treatment of rare diseases.
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Do rare Diseases account for the economic burden on India?
Updated : 2 years, 12 months ago IST
New Delhi [India], March 18 (ANI/GPRC): The meaning of the term "Rare" is "not occur very often", but rare diseases are cumulatively not so rare anymore. WHO refers to the rare disease as an often debilitating life-long disease or disorder with a prevalence of 1 or less per 1000 population.
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Delhi HC directs to hold meeting on issue of funding of clinical trial for
Updated : 3 years ago IST
The High court also sought a status report from AIIMS on the treatment of children suffering from rare diseases.
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Delhi HC pulls up Centre, AIIMS for not informing about clinical trial of
Updated : 3 years ago IST
The Delhi High Court on Wednesday pulled up the central government, All India Institute of Medical Sciences (AIIMS) and even the counsel for petitioners for not informing it about the beginning of clinical trials for rare disease medicine. The court was hearing the batch of petitions by the
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Study discover neurological disease involving cellular recycling process
Updated : 3 years ago IST
ATG4D assists in the autophagy process, which cells utilise to digest and recycle harmed proteins and other damaged parts of the cell to maintain health. Although all cells in the body use autophagy, neurons rely on it more than other cells do in order to survive. However, little is understo
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"Lives of 432 patients under threat": BJP MP Varun Gandhi requests govt to
Updated : 3 years, 2 months ago IST
Bharatiya Janata Party (BJP) leader and Lok Sabha MP Varun Gandhi on Saturday in an official letter lamented the inability of the central government to provide benefits to patients under the National Policy of Rare Diseases scheme.
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Awareness walk advocating inclusion of Persons with Disabilities in societ
Updated : 3 years, 3 months ago IST
New Delhi [India], December 8 (ANI/PNN): On the occasion of the "International Day of Persons with Disabilities" (IDPD) 2022, Ayushkama Foundation organized an "Awareness Walk for Equal Participation of Persons with Disabilities", at the Central Vista Avenue, India Gate, New Delhi. The organ
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Transthyretin Amyloid Cardiomyopathy (ATTR-CM) is a rare heart disease. Ea
Updated : 3 years, 3 months ago IST
New Delhi [India], November 18 (ANI/Mediawire): Often, heart disease symptoms are not paid adequate attention by a large section of the Indians unless the disease reaches an advanced stage. The studies(1) on the burden of cardiovascular diseases have revealed that the casualty rate due to CV
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The Conference in Molecular Diagnostics and Precision Medicine (AMDP-2022)
Updated : 3 years, 5 months ago IST
Chennai (Tamil Nadu) [India], September 16 (ANI/NewsVoir): The International Conference on Advances in Molecular Diagnostics and Precision Medicine (AMDP) began on 15th September 2022 at Anna University, Chennai and will continue till 17th September. The conference revolves around various fa
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Karnataka govt announces monetary aid for SC/ST patients with rare disease
Updated : 3 years, 6 months ago IST
Bengaluru (Karnataka) [India], September 8 (ANI): Karnataka Health Minister K Sudhakar on Thursday announced monetary aid for Scheduled Caste and Scheduled Tribe (SC/ST) patients of the state suffering from diseases categorised as ''rare diseases'' and ''high-cost diseases''.
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Avesthagen Limited enters into strategic alliance with Wipro; launches bre
Updated : 3 years, 8 months ago IST
Mumbai (Maharashtra) [India], June 20 (ANI/NewsVoir): Avesthagen Limited, a biotechnology major that specializes in predictive, preventive and personalized healthcare through the convergence of food, pharma and population genetics, has entered into a four-year strategic alliance with Wipro L
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Study reveals individuals suffering from rare diseases have poor health-re
Updated : 3 years, 9 months ago IST
Corvallis (Oregon) [US], June 10 (ANI): People with rare diseases have normally to wait years for proper diagnosis, often require to travel long distances for speciality care and face high out-of-pocket health care expenses, according to a recent study.
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