Search For "rare diseases"
12 lakh+ donors contributed over INR 125 Cr for rare disease patients on I
Updated : 4 years ago IST
Mumbai (Maharashtra) [India], February 28 (ANI/NewsVoir): ImpactGuru.com, India's leading integrated healthcare financing platform, reports one-of-its-kind, rare disease online donation crowdfunding movement with 12,00,000+ donors raising INR 125+ crore through 1200+ rare disease crowdfundin
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Delhi HC expresses displeasure over no treatment provided to children suff
Updated : 4 years, 1 month ago IST
New Delhi [India], February 2 (ANI): The Delhi High Court on Tuesday expressed its displeasure over treatment not yet provided to the children suffering from the rare disease Duchenne muscular dystrophy (DMD) despite the direction of the court. and directed to start the treatment immediately
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Evexia Lifecare Ltd plans major expansion; to enter into Bullion Trading
Updated : 4 years, 5 months ago IST
Vadodara (Gujarat) [India], October 11 (ANI/PNN): BSE listed (524444), Evexia Lifecare Limited has received initial plant layout permission from FDA to set up Active Pharmaceutical Ingredient (API) manufacturing plant of Isometamidium (Isometa) in addition to the current ongoing commercial a
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Kerala HC directs state govt to implement regulative measures for crowdfun
Updated : 4 years, 5 months ago IST
Kochi (Kerala) [India], October 7 (ANI): Kerala High Court on Wednesday directed the State Government to design a platform to implement regulative measures for crowdfunding towards treatment for children affected with rare diseases.
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Govt crowdfunding portal for rare diseases gets 31 patients registration i
Updated : 4 years, 6 months ago IST
New Delhi [India], August 18 (ANI): The government of India has started a unique initiative i.e a crowdfunding programme for the treatment of rare diseases with the help of a portal. Under this programme, corporates and individuals can donate online for the treatment of patients suffering fr
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Union Health Minister approves National Policy for Rare Diseases
Updated : 4 years, 11 months ago IST
New Delhi [India], April 4 (ANI): Union Health and Family Welfare Minister Harsh Vardhan approved the "National Policy for Rare Diseases 2021", which aims to lower the high cost of treatment for rare diseases with an increased focus on indigenous research, the health ministry said on Saturda
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Delhi HC gives nod for NCRD, orders to finalise National Health Policy for
Updated : 4 years, 11 months ago IST
New Delhi [India], March 23 (ANI): The Delhi High Court on Tuesday passed several directions for treatment of people suffering from rare diseases including setting up a National Consortium for Rare Disease (NCRD). The Court also directed the Central government to finalise and notify the Nati
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Study finds impact of genome sequencing in diagnosing rare diseases
Updated : 4 years, 11 months ago IST
Stockholm [Sweden], March 21 (ANI): A clinical study drove by journal Genome Medicine, constituted a major leap forward in the emerging field of precision medicine by highlighting the impact of how whole genome sequencing made possible to diagnose rare disease.
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More precise diagnoses made possible with whole genome sequencing, finds s
Updated : 4 years, 12 months ago IST
Solna [Sweden], March 17 (ANI): More than 1,200 people with rare diseases have received a diagnosis thanks to the integration of large-scale genomics into the Stockholm region's healthcare system. This is according to a study from Karolinska Institutet in Sweden that analysed the result of t
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PPHF, Niti Aayog Co-host Global Rare Disease Conference on International R
Updated : 5 years ago IST
New Delhi [India], March 5 (ANI/NewsVoir): To call for effective dialogue and decisive action against the alarming challenges of rare diseases in India, People to People Health Foundation (PPHF), a public health organization working towards better healthcare and Niti Aayog, Co-hosted a Globa
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Treatment of newborn with 2 rarest of rare diseases begins at a Jaipur Hos
Updated : 5 years, 6 months ago IST
Jaipur (Rajasthan) [India], September 10 (ANI): Doctors at the JK Lone Hospital in Jaipur began treating a newborn who is suffering from two rare diseases, which according to documented records also could be the first such case in the world.
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Pre-counselling, diagnosis can prevent genetic diseases and disorders in f
Updated : 6 years ago IST
Hyderabad (Telangana) [India], Mar 1 (ANI): Pre-counselling and right diagnosis are a must to prevent genetic diseases and disorders in the future generations, say doctors.
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