Search For "rare diseases"
‘Race for 7’: A multi-city run to create awareness for rare diseases
Updated : 7 years ago IST
New Delhi [India], Mar 14 (ANI): It is possible to live a fairly normal life with a rare disease, may be difficult but certainly not impossible.
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Dr. Lal PathLabs Ltd. collaborates with ORDI to sensitize India on rare di
Updated : 7 years ago IST
New Delhi [India], March 5 (ANI): Observing rare disease Awareness day on 28th February 2019, Dr. Lal PathLabs Ltd. has associated with Organization of Rare Disease India (ORDI) for a campaign “Rare Needs Care”. A leading diagnostic and related healthcare service provider, Dr. Lal PathLabs L
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Centre to reframe policy for rare diseases, files affidavit in HC
Updated : 7 years, 2 months ago IST
New Delhi [India], Dec 18 (ANI): The Central government has filed an affidavit in the Delhi High Court, underlying need to re-frame the policy for rare diseases which was finalised and approved last year.
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PIL in SC over committee formation for rare diseases' treatment
Updated : 7 years, 5 months ago IST
New Delhi [India] October 15 (ANI): A Public Interest Litigation (PIL) has been filed in the Supreme Court against the Centre and state governments for "failing to constitute a state-level technical-cum-administrative committee, and to identify designated hospitals for treatment of people s
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Reviewing first year of National Policy for Treatment of Rare Diseases
Updated : 7 years, 9 months ago IST
New Delhi [India], May 26 (ANI): The Ministry of Health & Family Welfare (MoH&FW), in 2017, took a landmark step by approving the National Policy for Treatment of Rare Diseases.
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ORDI appeals to state governments to implement rare disease policy
Updated : 7 years, 10 months ago IST
New Delhi [India], Apr 21 (ANI): Organisation for Rare Disease India (ORDI), a non-profit patient association focusing on improving the health of patients with rare diseases, has taken the initiative to appeal to the state governments to implement individual state rare disease policies as pe
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More about National Rare Disease policy
Updated : 8 years ago IST
New Delhi [India], Mar 08 (ANI): Rare diseases, which are often referred to as orphan diseases, are estimated to have impacted 72-96 million people in India. The Indian government has now put a National Rare Disease Policy in place and Rs 100 crore funds have been allocated towards genetic d
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Delhi state government takes a step forward for rare diseases
Updated : 8 years, 1 month ago IST
New Delhi [India], Feb 9 (ANI): As an important step towards expediting the process of providing treatment to rare disease patients, the Delhi state government, in the High Court, has proposed the setting up of a Technical cum Administrative Committee for rare diseases.
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Rare diseases lead to poor quality of life in people
Updated : 8 years, 2 months ago IST
Washington D.C. [USA], Dec 20 (ANI): People living with rare diseases are at greater risk of experiencing poor quality of life such as increased levels of anxiety, depression, pain, fatigue.
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Providing timely treatment to rare disease patients is need of the hour
Updated : 8 years, 3 months ago IST
New Delhi [India], Nov 24 (ANI): Putting the focus on rare diseases, experts have laid emphasis on ensuring timely treatment for the patients. Although very few people are affected by these disorders, rare diseases are often chronic and severe and make the life of a patient debilitating.
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Timely treatment of rare diseases essential for patients' quality life
Updated : 8 years, 4 months ago IST
Chennai (Tamil Nadu) [India], Oct 17 (ANI): Emphasising on the importance of timely treatment for Lysosomal Storage Disorders (LSDs), medical experts urged for concrete steps to be taken in this direction.
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Timely diagnosis of rare diseases is important, urge experts
Updated : 8 years, 6 months ago IST
New Delhi [India], Sep 15 (ANI): The early diagnosis of rare diseases holds paramount importance, according to experts.
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