Search For "spinal muscular atrophy"
Abu Dhabi leads world in breakthrough gene replacement therapy 'ITVISMA' f
Updated : 2 months, 2 weeks ago IST
Abu Dhabi has become the first place globally to deliver ITVISMA gene therapy for spinal muscular atrophy, marking a major healthcare milestone and reinforcing the emirate's role as a leader in genomics, precision medicine, and advanced treatments.
Read More
UAE approves gene replacement therapy for new age group in spinal muscular
Updated : 2 months, 3 weeks ago IST
The Emirates Drug Establishment (EDE) has announced the approval of Itvisma (onasemnogene abeparvovec), a gene therapy that uses an adeno-associated viral vector to treat spinal muscular atrophy (SMA) in eligible adults and children aged two years and above.
Read More
Kerala: Spinal defect of 23-year-old Maldivian cured through rare surgery
Updated : 1 year, 4 months ago IST
The spinal defect of a 23-year-old Maldivian was cured through a rare surgery at a private hospital in Thiruvananthapuram that has fulfilled his prolonged wish to sit straight without falling.
Read More
AAP's Sanjay Singh requests Rajya Sabha to allow him to speak on Spinal mu
Updated : 1 year, 7 months ago IST
"Sir, I would like to bring to your notice that at present hundreds of children in the country are suffering from a serious disease called SMA. This disease is so dangerous that due to it most of the infants die across the world," Singh's notice read.
Read More
More than 1.6 Lakh Donors Unite via Impact Guru to Help Son of Rajasthan P
Updated : 1 year, 9 months ago IST
Jaipur (Rajasthan) [India], May 23: Baby Hridyansh, suffering from Spinal Muscular Atrophy (SMA) type 2, successfully underwent Zolgensma gene therapy on Tuesday, 14th May at JK Lone Hospital, Jaipur. This therapy, known for its potential to dramatically improve the quality of life for SMA p
Read More
Rajasthan: 22-month-old baby battles rare disease, Rs 17.5 Cr injection ne
Updated : 2 years ago IST
22-month-old Hridyansh is fighting the most severe form of Spinal Muscular Atrophy (SMA) Type 2, which causes the wasting of voluntary muscles and impairs breathing.
Read More
Toddler from Rajasthan fights rare disorder, needs crores to live; Indian
Updated : 2 years ago IST
Little Hridyansh is fighting the most severe form of Spinal Muscular Atrophy (SMA) Type 2, which causes the wasting of voluntary muscles and impairs breathing.
Read More
Karnataka CM appeals to PM Modi for lifesaving aid for toddler battling ra
Updated : 2 years, 4 months ago IST
Karnataka CM has requested PM Modi's assistance in securing financial support from the Centre for the child's treatment and urged the consideration of waiving import taxes on the required Zolgensma injection.
Read More
Rs 80 lakhs raised in 80 minutes on Impact Guru by Delhi's Jangra Family f
Updated : 3 years, 1 month ago IST
Mumbai (Maharashtra) [India], February 2 (ANI/NewsVoir): Delhi-based Jangra family is raising funds through India's leading crowdfunding platform ImpactGuru.com for their 11-month-old son Kanav Jangra who is suffering from SMA (Spinal Muscular Atrophy) Type 2. 15,000+ generous donors across
Read More
Study finds correlation between lethal childhood disease and age-related m
Updated : 3 years, 3 months ago IST
New research suggests that adopting some of the strategies behind successfully treating the childhood disease of spinal muscular atrophy may enable the development of therapies to curb the muscle decline that accompanies aging.
Read More
Research: Growing motor neurons guided by 'love-hate relationship' with bl
Updated : 3 years, 4 months ago IST
When neurons involved in movement called motor neurons form, they must build connections that reach from the brain, brainstem, or spinal cord all the way to the head, arms, or the tips of the toes. How neurons navigate these systems and "decide" where and how to grow has largely been a myste
Read More
Research: Is the cost of treating a hereditary neuromuscular disease affec
Updated : 3 years, 9 months ago IST
New Jersey [US], June 8 (ANI): Early detection and treatment of children with spinal muscular atrophy (SMA), a genetic ailment characterised by muscle weakness and wasting, can minimise the total financial expenditures associated with the condition, according to new research.
Read More