Search For "spinal muscular atrophy"
Rs 14.92 crore raised on ImpactGuru.com to cover treatment expenses of a 5
Updated : 5 years, 1 month ago IST
Mumbai (Maharashtra) [India], February 10 (ANI/NewsVoir): Mumbai-based Priyanka and Mihir Kamat raised Rs 14.92 crore through crowdfunding on ImpactGuru.com to cover the cost of the World's Most Expensive Drug - Zolgensma, as their five-month-old baby Teera is diagnosed with Spinal Muscular
Read More
ImpactGuru Fundraiser Initiated to Cover Rs 16 Crore Zolgensma Cost of 3-m
Updated : 5 years, 3 months ago IST
Mumbai (Maharashtra) [India], November 17 (ANI/NewsVoir): Mumbai based Priyanka and Mihir Kamat have taken to crowdfunding on ImpactGuru.com to cover the cost of Zolgensma therapy as their 3-month-old baby Teera is diagnosed with Spinal Muscular Atrophy (SMA) Type 1.
Read More
Treatment of newborn with 2 rarest of rare diseases begins at a Jaipur Hos
Updated : 5 years, 6 months ago IST
Jaipur (Rajasthan) [India], September 10 (ANI): Doctors at the JK Lone Hospital in Jaipur began treating a newborn who is suffering from two rare diseases, which according to documented records also could be the first such case in the world.
Read More
Study recommends early treatment for babies' neuromuscular disorder
Updated : 7 years, 8 months ago IST
Washington D.C. [USA], July 17 (ANI): A new study suggests that children with Spinal muscular atrophy (SMA) can achieve improvements in motor function after six months of treatment with the drug nusinersen, particularly when treatment began before seven months of age.
Read More