Search For "spinal muscular atrophy"
12 lakh+ donors contributed over INR 125 Cr for rare disease patients on I
Updated : 4 years ago IST
Mumbai (Maharashtra) [India], February 28 (ANI/NewsVoir): ImpactGuru.com, India's leading integrated healthcare financing platform, reports one-of-its-kind, rare disease online donation crowdfunding movement with 12,00,000+ donors raising INR 125+ crore through 1200+ rare disease crowdfundin
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South Eastern Coalfields to pay Rs 16 crore for treatment of coal miner's
Updated : 4 years, 3 months ago IST
New Delhi [India], November 18 (ANI): SECL, a subsidiary of Coal India Limited (CIL), has agreed to bear a cost of Rs 16 crores for the treatment of a two-year-old child of its coal miner who is suffering from a rare disease called Spinal Muscular Atrophy (SMA).
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Ayansh's parents raising 16 crores on Ketto to treat his SMA
Updated : 4 years, 7 months ago IST
Mumbai (Maharashtra) [India], August 13 (ANI/BusinessWire India): Ayansh Madan, a 16 month old child in Gurgaon has been suffering from spinal muscular atrophy (SMA).
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Roche's Evrysdi® (risdiplam) - the first and only oral treatment for
Updated : 4 years, 7 months ago IST
Mumbai (Maharashtra) [India], July 29 (ANI/PR Newswire): Roche today announced the launch of Evrysdi®(risdiplam), the first and only approved treatment in India for Spinal Muscular Atrophy (SMA) patients.
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Child with rare disease dies, Kerala HC asks state govt about Rs 16.5 cror
Updated : 4 years, 7 months ago IST
Kochi (Kerala) [India], July 22 (ANI): The Kerala High Court on Thursday directed the state government to inform about Rs 16.5 crore collected through crowdfunding for the treatment of a child who died of Spinal Muscular Atrophy (SMA) recently.
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Kerala CM requests PM Modi to waive duty on imported drug for child with r
Updated : 4 years, 8 months ago IST
Thiruvananthapuram (Kerala) [India], July 9 (ANI): Kerala Chief Minister Pinarayi Vijayan on Thursday wrote to Prime Minister Narendra Modi requesting him to ask the finance ministry not to levy Customs duty and the Integrated Goods and Services Tax for the import of a Rs 18 crore life-sa
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Cure SMA Foundation of India Partners with ImpactGuru.com to support all i
Updated : 4 years, 8 months ago IST
Mumbai (Maharashtra) [India], July 5 (ANI/NewsVoir): To support its registered patients fighting Spinal Muscular Atrophy (SMA) fundraise for their life-saving medicines, Cure SMA Foundation of India, a public charitable trust with pan India representation, has collaborated with ImpactGuru.co
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Hyderabad boy battling rare disease receives world's most expensive medici
Updated : 4 years, 9 months ago IST
Hyderabad (Telangana) [India], June 13 (ANI): Three-year-old Ayaansh Gupta from Hyderabad, suffering from a rare disease Spinal Muscular Atrophy (SMA), has been administered with the world's most expensive medicine ZOLGENSMA, after his parents mobilised Rs 16 crore through crowd-funding.
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Shilpa Shetty Kundra gets emotional as she urges fans to donate for a spec
Updated : 4 years, 9 months ago IST
Mumbai (Maharashtra) [India], May 27 (ANI): Bollywood star Shilpa Shetty Kundra in an emotional video has urged her fans to donate to help a mother whose son suffers from Spinal Muscular Atrophy.
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B-Town celebs come forward to help 2-year-old's treatment expenses worth R
Updated : 4 years, 11 months ago IST
Mumbai (Maharashtra) [India], April 16 (ANI/NewsVoir): Since earlier this week, a large number of Bollywood celebrities namely Alia Bhatt, Rajkummar Rao, Ajay Devgan, Kartik Aaryan, Anil Kapoor, Shraddha Kapoor, Sara Ali Khan, Arjun Kapoor amongst significant others have come forward to supp
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Delhi couple resorts to crowdfunding for treatment of their infant sufferi
Updated : 5 years ago IST
New Delhi [India], March 6 (ANI): A couple living in Delhi's Paschim Vihar are trying to raise Rs 16 crore through crowdfunding to save their 10-month-old child Rehansh's life, who is suffering from Spinal Muscular Atrophy (SMA) 1, a rare genetic disease.
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Hyderabad family seeks public help for 2-yr-old son's treatment costing Rs
Updated : 5 years ago IST
Hyderabad (Telangana) [India], February 16 (ANI): A family in Hyderabad is seeking help from the public on Tuesday to help them get treatment worth Rs 16 crores for their son who is battling with Spinal Muscular Atrophy (SMA).
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