UAE approves gene replacement therapy for new age group

The Emirates Drug Establishment (EDE) has announced the approval of Itvisma (onasemnogene abeparvovec), a gene...

More than 1.6 Lakh Donors Unite via Impact Guru

Jaipur (Rajasthan) [India], May 23: Baby Hridyansh, suffering from Spinal Muscular Atrophy (SMA) type 2,...

22-month-old baby battles rare disease,needs Rs 17.5 Cr injection

22-month-old Hridyansh is fighting the most severe form of Spinal Muscular Atrophy (SMA) Type 2, which causes the...

Toddler from Rajasthan fights rare disorder, needs crores to live

Little Hridyansh is fighting the most severe form of Spinal Muscular Atrophy (SMA) Type 2, which causes the...

Treatment timing, affect cost of treating neuromuscular disease

New Jersey [US], June 8 (ANI): Early detection and treatment of children with spinal muscular atrophy (SMA), a...

12 lakh+ donors contributed over INR 125 Cr for rare disease...

Mumbai (Maharashtra) [India], February 28 (ANI/NewsVoir): ImpactGuru.com, India's leading integrated healthcare...

South Eastern Coalfields to pay Rs 16 crore for treatment of...

New Delhi [India], November 18 (ANI): SECL, a subsidiary of Coal India Limited (CIL), has agreed to bear a cost of...

Ayansh's parents raising 16 crores on Ketto to treat his SMA

Mumbai (Maharashtra) [India], August 13 (ANI/BusinessWire India): Ayansh Madan, a 16 month old child in Gurgaon has...

Roche's Evrysdi® (risdiplam) - the first and only oral...

Mumbai (Maharashtra) [India], July 29 (ANI/PR Newswire): Roche today announced the launch of...

Child with rare disease dies, Kerala HC asks state govt about...

Kochi (Kerala) [India], July 22 (ANI): The Kerala High Court on Thursday directed the state government to inform...

Kerala CM requests PM Modi to waive duty on imported drug for...

Thiruvananthapuram (Kerala) [India], July 9 (ANI): Kerala Chief Minister Pinarayi Vijayan on Thursday wrote to...

Cure SMA Foundation of India Partners with ImpactGuru.com to...

Mumbai (Maharashtra) [India], July 5 (ANI/NewsVoir): To support its registered patients fighting Spinal Muscular...