Mumbai (Maharashtra) [India], July 29 (ANI/PR Newswire): Roche today announced the launch of Evrysdi®(risdiplam), the first and only approved treatment in India for Spinal Muscular Atrophy (SMA) patients.
Kochi (Kerala) [India], July 22 (ANI): The Kerala High Court on Thursday directed the state government to inform about Rs 16.5 crore collected through crowdfunding for the treatment of a child who died of Spinal Muscular Atrophy (SMA) recently.
Thiruvananthapuram (Kerala) [India], July 9 (ANI): Kerala Chief Minister Pinarayi Vijayan on Thursday wrote to Prime Minister Narendra Modi requesting him to ask the finance ministry not to levy Customs duty and the Integrated Goods and Services Tax for the import of a Rs 18 crore life-sa
Mumbai (Maharashtra) [India], July 5 (ANI/NewsVoir): To support its registered patients fighting Spinal Muscular Atrophy (SMA) fundraise for their life-saving medicines, Cure SMA Foundation of India, a public charitable trust with pan India representation, has collaborated with ImpactGuru.co
Hyderabad (Telangana) [India], June 13 (ANI): Three-year-old Ayaansh Gupta from Hyderabad, suffering from a rare disease Spinal Muscular Atrophy (SMA), has been administered with the world's most expensive medicine ZOLGENSMA, after his parents mobilised Rs 16 crore through crowd-funding.
Mumbai (Maharashtra) [India], June 1 (ANI): The handsome hunk of Bollywood, Tiger Shroff, on Tuesday treated fans to a stunning close-up picture showcasing his chiselled jawline and muscular biceps.
Mumbai (Maharashtra) [India], May 27 (ANI): Bollywood star Shilpa Shetty Kundra in an emotional video has urged her fans to donate to help a mother whose son suffers from Spinal Muscular Atrophy.
Mumbai (Maharashtra) [India], April 16 (ANI/NewsVoir): Since earlier this week, a large number of Bollywood celebrities namely Alia Bhatt, Rajkummar Rao, Ajay Devgan, Kartik Aaryan, Anil Kapoor, Shraddha Kapoor, Sara Ali Khan, Arjun Kapoor amongst significant others have come forward to supp
Cincinnati (Ohio) [US], April 16 (ANI): University of Cincinnati researchers have found a newer, more effective treatment for the disease Pompe that could become the new standard of care for the rare condition.
New Delhi [India], March 6 (ANI): A couple living in Delhi's Paschim Vihar are trying to raise Rs 16 crore through crowdfunding to save their 10-month-old child Rehansh's life, who is suffering from Spinal Muscular Atrophy (SMA) 1, a rare genetic disease.