Search For "patient advocacy"
International Rare Disease Day 2026 Observed on 22nd February 2026 at SGPG
Updated : 2 months, 3 weeks ago IST
New Delhi [India], February 23: International Rare Disease Day was observed with great commitment and solidarity on 22nd February 2026 through a collaborative initiative of Rare Diseases India Foundation (RDIF) and Sanjay Gandhi Postgraduate Institute of Medical Sciences (SGPGI), Lucknow. Th
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Thalassemic patients urge Parliament to pass life-saving bill regulating b
Updated : 5 months, 4 weeks ago IST
Thalassemic patients urged Parliament to urgently pass the National Blood Transfusion Bill, 2025, which aims to regulate blood transfusions and ensure safe blood for patients.
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Project Prarambh: Initiative by IIDE to digitally transform the Non-Profit
Updated : 4 years, 3 months ago IST
Mumbai (Maharashtra) [India], February 10 (ANI/PRNewswire): In an attempt to grow their online presence during Covid, several Patient Advocacy Groups (PAGs) and Non-Profit Organisations such as the Indian Cancer Society, Organisation for Rare Disease (ORD), and Cure SMA partnered with IID
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